Friendly reminder- regular support group meetings in June, July, September, October and December are cancelled.  We are working on special programs in 2014 and we would like to pour energy in putting good program for coming year.  We are looking for new volunteers who would like to be a part of this wonderful group of people, Portland Kidney group.  Please contact to Yasuyo, (503)288-7020.  See you everybody at Picnic and Holiday party!

Spring 2013 Patient Education Symposium

Wow, what a great program everyone...lots of new people, Area Manager, Facility Manager,Vendors, a Doctor,etc. at the event. Great job, Troyce as Masters of Ceremony, you always do a masterful job of keeping things alive and moving! Great job team, with everyone working together in various roles contributing to this event. Thank you Kidney Foundation for the critical funding to make the event happen and to the Renal Network folks & patient advisory members present. Many of the comments were tearful and touching, heart felt. It was fun to honor so many patients, care supporters, and donors, it has been said that when you honor others, you also honor yourself; so you all are worthy of the highest honor...Congratulations on a job well done!!


Hope to see you everyone at the Picnic on August 11, 2013 from 1 to 4pm.   

Patient, Professional & Community Picnic :Everyday Heroes: Health Professionals

Presented by NKF and the Portland Kidney Group

Sunday, August 11, 2013
1-4PM
Peninsula Park
700 N. Rosa Parks Way
Portland, OR 97217

Entertainment and activities for all ages throughout the afternoon! Fun Children's activities!
Main course BBQ will be provided.
Please contribute a kidney-friendly dish according to your last name:
Last Name A-J: Side Dish
Last Name K-S: Dessert
Last Name T-Z: Drinks

RSVP Required by August 1st to:
Julia Schrogin
Email: julia.schrogin@kidney.org
Call: 415.543.3303

February Support Group meeting note from Robert P.

The Portland Kidney Patients Advocacy Group participated in a joint meeting with the Portland Polycystic Kidney Group at Good Samaritan Hospital on Sunday, February 10th, to hear Dr. Bennett, a specialist in transplantation, talk about the challenges of kidney disease. Dr. Bennett informed the group that diabetes and hypertension are major causes of kidney failure; once kidney function falls below 15 percent dialysis is required. He noted that the government will not pay for dialysis unless the kidney fictional level is below 15 %, Medicare coverage that started covering kidney failure in 1972, will then provide payment. He noted that dialysis coverage usually cost about $120,000 per year. On the issue of Polycystic Kidney Disease, Dr. Bennett indicated that coffee and/or caffeine products may be a contributing factor to the disease, he also indicated that a Dash Diet with lots of fruits and vegetables may slow the progression of the disease. Dr. Bennett shared information on trails and research studies that will impact Polycystic Kidney Disease in the future and the DNA factors associated with this disease.

Thank you for Dr. Bennett and all participants who were there!

2013 calendar

2013 Schedule

Yes!  We are meeting monthly!  Please join us.
Sunday, January 20 : 2-4pm
Support Group
Room 1077, main hospital at Legacy Emanuel

Sunday, February 10 :2-4pm (2nd Sunday)
Dr. Bennett, Legacy Transplant
Good Samaritan Auditorium
1040 NW 22nd Ave Portland, OR 97210

Saturday, March 9: 9am-1pm (1st Sunday)
KEEP program, Irvington Convenant Church
4046 NE Martin Luther King Jr. Blvd

Sunday, March 17 : 2-4pm
Support Group
Room MOB 2-WEST at Legacy Emanuel

Sunday, April 21 : 9am-2pm
Patient Education Symposium
Lorenzen Conference Center, Legacy Emanuel

Sunday, May 19 :  2-4pm
Support Group
Room MOB 2-WEST at Legacy Emanuel

Saturday, June 16 : 2-4pm
no meeting
Sunday, July 21 : 2-4pm
no meeting

Sunday, August 11 :1-4 pm (2nd Sunday)
No regular meeting
NKF/PKG Summer Picnic -Pot Luck
at Peninsula Park NE Portland
Please RSVP to Julia.schrogin@kidney.org, (415)543-3303

Sunday, September 15 : 2-4pm
no meeting

Sunday, October 20 :2-4pm
no meeting

Sunday, November 10 (2nd Sunday) : 1-3pm
No regular meeting
LAST MEETING OF THE YEAR
4th Anniversary/holiday party-Pot Luck
At Kennedy school, community room,
15736 N.E. 33rd Ave. Portland, OR 97211

No meeting November 17 or December 15