2018 Portland Kidney Group Schedule

 

Sunday, August 26:Noon- 2:30 pm

NKF/PKG Kidney Wellness Fair

& Community Picnic

BBQ lunch provided

At Peninsula Park NE Portland

RSVP by August 20th to https://tinyurl.com/NKFpicnic

888.427.5653 x. 504

patty.mccormac@kidney.org

 

Wednesday, September 5: 10am-11:30am

Support Group Meeting             

FKC Scholls Ferry

10300 SW Nimbus Ave P-A

Tigard OR 97223     

Contact: Yasuyo Tsunemine, LCSW

Claudia Kreft, RD    (503)443-4909

 

Wednesday, October 3: 2pm-3:30pm       

Support Group Meeting

Administration Conference Room,

2nd Floor At Kaiser Sunnybrook

9900  SE Sunnyside Road

Clackamas, OR 97015

Contact: Heather Mirenda, LCSW

David Pleiman, LCSW       (503) 571-7241

       

Sunday, November11:Noon-2:30pm

9^th Anniversary Holiday gathering and guest speaker: Claudia Kreft, RD

“Kidney friendly holiday cooking”

Lunch provided

Lorenzen Conference center

Legacy Emanuel hospital

RSVP by 11/7:

 888.427.5653, fax 415.543.3331 or email to  celine.koh@kidney.org      

Call for Peer support:

*Pam: 503-289-0936

*Troyce: 503-333-4959

*Aimee: 503-494-7888 mentor for transplant recipient and donor

*Tom at mmfrat@wavecable.com for PD

*Mark at mcbeam62@gmail.com for Home hemo

 

Questions for support group meetings:

Yasuyo Tsunemine, LCSW (503) 443-4909

Portland Kidney Group Holiday Get Together

Sunday, November 8: 2-3:00pm

Q Center 4115 N Mississippi Ave.

Coffee/tea and Kidney friendly dessert will be provided.

There is parking in back of building; also, there is bus line #4

that stops by.

If you have questions please call: Yasuyo Tsunemine, LCSW:

503-443-4909

Pam 503-289-0936

Troyce 503-333-4959;

                            Sponsored by

Portland Kidney Group & National Kidney

Foundation.

* There will also be a gathering in remembrance of Elizabeth Kemble, at the beginning of this event. *  

Inclusionary Planning Workshop for patients and professionals invitation

Inclusionary Planning Workshop for patients and professionals 

Brought to you by the Dahlia Movement – Meaningful involvement, true engagement
You’re invited to join us for a lively discussion, interactive activities and great examples of how to include customers and patients in transportation design, planning and implementation of services. Whether you have a challenge you would like to resolve and have no idea how to start or would like to revitalize an ongoing advisory committee, this workshop will provide you with examples of how to approach engagement differently.

When: Wednesday, October 14, 2015

11:00AM – 1:00PM

Where: Ride Connection

9955 NE Glisan

Portland, OR 97220

RSVP: Please RSVP by October 12th. Register online https://www.surveymonkey.com/r/Inclusionary_Planning_Workshop

or call 503-528-1720

Registration required. Space is limited. Lunch provided.

Workshop Agenda:

11:00 Welcome and key note address
11:20 Embracing involvement - Interactive process
11:30 What does it truly mean to engage, excite and motivate
11:50 “Yes and” Exercise – creating an environment for all voices to be heard
12:20 Success of engagement
12:45 What’s next? Opportunities for continued discussions and support

Lunch provided

Stipends and transportation to the workshop available for patients and customers upon request

Professionals are encouraged to bring a patient or consumer

About Ride Connection

As a nonprofit focused on transportation options for the Portland Metro area, independence and community livability is important to Ride Connection. We believe our mission to link accessible, responsive transportation with community needs helps ensure that older adults, people with disabilities and low income individuals are empowered to actively participate in their communities. We work on a neighborhood scale to coordinate services tailored to the specific needs of each community served. Learn more at www.rideconnection.org.

About Dahlia

Through a process of involving community members and people with kidney disease as well as medical and transportation professionals, Ride Connection went to the heart of existing transportation challenges for people who receive dialysis treatment. We found that without reliable, flexible and affordable transportation, people need transportation to treatment experienced negative health impacts. With the information gleaned from our inclusionary process, we recently started a pilot project to address these important issues around transportation.

Retreat For Young Adults with CKD

Retreat For Young Adults With Chronic Kidney Disease A Success!

A great evening filled with laughs and wonderful stories

Thank you to everyone who was able to attend! 

A special thank you to our sponsors at: 

 Legacy Foundation, National Kidney Foundation and CNSW OR SW WA chapters

2015 Summer Patient Retreat

Portland Kidney Group Updated Calender

Portland Kidney Group

Serving the Portland and Southwest Washington Areas

   

For updated information visit:

pkgportland.blogspot.com

Facebook “Living with chronic kidney failure”

Portland Kidney Group

Serving Portland and SW Washington

Locations/times are varied.

Call for more information:

Elizabeth, 503-489-5773

Pam,  503-289-0936

Troyce, 503-333-4959

Yasuyo Tsunemine, LCSW:503-443-4909 (Mon/Tue)

Various events supported by NKF, Legacy transplant team, and OHSU transplant team

 

2015 Schedule

Sunday, January 18 :2-3:30pm

Kidney kick off support group meeting

Facilitator: Patty

Room 1077, main hospital at Legacy Emanuel

Sunday, March 15: 9:30am-2pm

National Kidney Month

PKG/NKF Patient Education Symposium

Lorenzen Conference Center, Legacy Emanuel          

  

This group is for you if you are:

• Diagnosed with Chronic Kidney Failure
• On Dialysis
• A Transplant Recipient or Donor
• A Care Giver/Patient Supporter
• Have Questions and Need Support

Sunday, May 17 : 2-3:30pm

Support group meeting

Facilitator: Elizabeth

Room 1077, main hospital at Legacy Emanuel   

   

Sunday, July 19 : 2-3:30pm

Support group meeting

Facilitator: Troyce

Room 1077, main hospital at Legacy Emanuel   

Saturday, August 8 : 1:30-9pm

Retreat for young adults 21-30yrs with CKD

Aldersgate retreats center

7790 Marion Rd SE, Turner, OR

Register by July 20 to http://bit.ly/YoungAdult2015

  

Sunday, August  23 :1:00- 4:00 pm

PKG/NKF Summer Picnic -Pot Luck

Hawaiian theme at Peninsula Park NE Portland

RSVP by August 15th to programsnca@kidney.org or (415)543-3303

Sunday, October  18 : 2-3:30pm

“Is Kidney Transplant right for you?”

Legacy Transplant Team

Room 1077, main hospital at Legacy Emanuel          

Sunday, November 8  : 2-3:30pm

LAST MEETING OF THE YEAR

6th Anniversary coffee and dessert gathering

At Q Center,4115 N Mississippi Ave, Portland, OR ‎

(503) 234-7837

Portland Patient Picnic August 23!!

 Join us for Food and Friends!!

This year's National Kidney Foundation Patient Professional and Community Picnic will be held at Peninsula Park, on August 23, 2015. Come enjoy music and food,with friends and partners in fighting kidney disease. We had a great turn out last year and enjoyed getting to know the wonderful community here in Portland. The Picnic will begin at 1pm and end at 4pm please also bring a dish to share and enjoy with others!

Last Name 

A-G

Salad or appetizer 

K-S

Side dish

T-Z

Drinks 

Please R.S.V.P. to

888-427-5653

You can also nominate a professional hero to be recognized at the picnic 

Call for more info 

Check out the new ‘EverybodyPees’ video! Share it with everyone you care about to make sure they keep their kidneys happy and healthy. everybodypees.org

Portland Kidney Group Holiday Party-Pot Luck 2014

Don't miss this great Holiday Party-Pot Luck, we'll see you there!

2014 Summer Picnic-Pot-Luck!

National Kidney Foundation and Portland Kidney Group are getting ready  for our annual Summer Picnic Pot-Luck to be held at Peninsula Park in North Portland. This event is a way for all staff and patient to hang out and have a Great Time! :) You will need to call to RSVP if you are attending this event so, Here is the Information you need as follows

National Kidney Foundation
Tell # 888-427-5653

by Email:
programsnca@kidney.org

RSVP BY UAGUST 15

Summer is Here!

Everyone, I hope you are enjoying this gorgeous, sunny days we have been having here in Portland. As Summer is just around the corner I will like to send a quick reminder to keep an eye on fruit that is High in Potassium and Phosphorus, as you all know along with Summer comes Yummy, delicious fruit!
Enjoy  your SUMMER, STAY HEALTHY, EVERYONE!


P.S. Our meeting is this Sunday 18th from 2-4pm, I will see you there.:)

World Kidney Day

Everyone, don't forget to wear Orange color T shirt/blouse, any thing to show your support on Kidney Disease.  #WorldKidneyDay!

Keep Warm!

  Hello everyone, hope you are all doing well. Today was a very sunny day with clear blue skies but don't let the sun fool you because is not warm! This weather we're having is extremely cold and windy! so make sure you are well bundle with layers of clothing, because, remember dialysis patients are more prompt to catch a flu!


 

PKG / NKF Education Symposium 2014

For more information call Roz at 888-427-5653, ext. 517

Our first meeting of the Year!

  So exited to announce, we had our first meeting of the year 2014 today, Sunday, January 19th at Emmanuel Hospital! We met new patient and got to see familiar faces as well, we share our own
experiences, the struggles that come with being on Hemodialysis, Small veins, bleeding etc...
We also discuss the different modalities of treatment available now days for patients to choose from, is a matter of finding which treatment works best for the patient and last but not least we talk a bit on Education Symposium panel discussion, which will be on Sunday, March 2nd held Emmanuel Hospital
  It was a good meeting, all went well...lets hope more patients, caregivers show up....It's a great way to give support to each other, reach out to one and other, and spread the word of Kidney disease.
 

Friendly reminder- regular support group meetings in June, July, September, October and December are cancelled.  We are working on special programs in 2014 and we would like to pour energy in putting good program for coming year.  We are looking for new volunteers who would like to be a part of this wonderful group of people, Portland Kidney group.  Please contact to Yasuyo, (503)288-7020.  See you everybody at Picnic and Holiday party!

Spring 2013 Patient Education Symposium

Wow, what a great program everyone...lots of new people, Area Manager, Facility Manager,Vendors, a Doctor,etc. at the event. Great job, Troyce as Masters of Ceremony, you always do a masterful job of keeping things alive and moving! Great job team, with everyone working together in various roles contributing to this event. Thank you Kidney Foundation for the critical funding to make the event happen and to the Renal Network folks & patient advisory members present. Many of the comments were tearful and touching, heart felt. It was fun to honor so many patients, care supporters, and donors, it has been said that when you honor others, you also honor yourself; so you all are worthy of the highest honor...Congratulations on a job well done!!


Hope to see you everyone at the Picnic on August 11, 2013 from 1 to 4pm.   

Patient, Professional & Community Picnic :Everyday Heroes: Health Professionals

Presented by NKF and the Portland Kidney Group

Sunday, August 11, 2013
1-4PM
Peninsula Park
700 N. Rosa Parks Way
Portland, OR 97217

Entertainment and activities for all ages throughout the afternoon! Fun Children's activities!
Main course BBQ will be provided.
Please contribute a kidney-friendly dish according to your last name:
Last Name A-J: Side Dish
Last Name K-S: Dessert
Last Name T-Z: Drinks

RSVP Required by August 1st to:
Julia Schrogin
Email: julia.schrogin@kidney.org
Call: 415.543.3303

February Support Group meeting note from Robert P.

The Portland Kidney Patients Advocacy Group participated in a joint meeting with the Portland Polycystic Kidney Group at Good Samaritan Hospital on Sunday, February 10th, to hear Dr. Bennett, a specialist in transplantation, talk about the challenges of kidney disease. Dr. Bennett informed the group that diabetes and hypertension are major causes of kidney failure; once kidney function falls below 15 percent dialysis is required. He noted that the government will not pay for dialysis unless the kidney fictional level is below 15 %, Medicare coverage that started covering kidney failure in 1972, will then provide payment. He noted that dialysis coverage usually cost about $120,000 per year. On the issue of Polycystic Kidney Disease, Dr. Bennett indicated that coffee and/or caffeine products may be a contributing factor to the disease, he also indicated that a Dash Diet with lots of fruits and vegetables may slow the progression of the disease. Dr. Bennett shared information on trails and research studies that will impact Polycystic Kidney Disease in the future and the DNA factors associated with this disease.

Thank you for Dr. Bennett and all participants who were there!

2013 calendar

2013 Schedule

Yes!  We are meeting monthly!  Please join us.
Sunday, January 20 : 2-4pm
Support Group
Room 1077, main hospital at Legacy Emanuel

Sunday, February 10 :2-4pm (2nd Sunday)
Dr. Bennett, Legacy Transplant
Good Samaritan Auditorium
1040 NW 22nd Ave Portland, OR 97210

Saturday, March 9: 9am-1pm (1st Sunday)
KEEP program, Irvington Convenant Church
4046 NE Martin Luther King Jr. Blvd

Sunday, March 17 : 2-4pm
Support Group
Room MOB 2-WEST at Legacy Emanuel

Sunday, April 21 : 9am-2pm
Patient Education Symposium
Lorenzen Conference Center, Legacy Emanuel

Sunday, May 19 :  2-4pm
Support Group
Room MOB 2-WEST at Legacy Emanuel

Saturday, June 16 : 2-4pm
no meeting
Sunday, July 21 : 2-4pm
no meeting

Sunday, August 11 :1-4 pm (2nd Sunday)
No regular meeting
NKF/PKG Summer Picnic -Pot Luck
at Peninsula Park NE Portland
Please RSVP to Julia.schrogin@kidney.org, (415)543-3303

Sunday, September 15 : 2-4pm
no meeting

Sunday, October 20 :2-4pm
no meeting

Sunday, November 10 (2nd Sunday) : 1-3pm
No regular meeting
LAST MEETING OF THE YEAR
4th Anniversary/holiday party-Pot Luck
At Kennedy school, community room,
15736 N.E. 33rd Ave. Portland, OR 97211

No meeting November 17 or December 15

Exploring the Transplant Option with Tammy Sobers of OHSU

The monthly gathering of the Portland Kidney Group met on Sunday afternoon, May 15, 2011,  About a dozen people dealing with the challenges of living effectively with kidney disease first listened to an informative and practical talk followed by a lively question and answer period.  Tammy Sobers, head of the transplant division of OHSU (Oregon Health and Science University) lead the discussion.  She focused her talk around answering three main questions:

• How do you get ready for a transplant?
• What are key referrals for kidney patients?
• What skills do you need to hone to ensure a successful transplant?

Tammy's comprehensive analysis on the state of all areas of kidney transplant - especially the particular circumstances affecting those of us in Portland, Oregon -- was illuminating, instructive, and inspiring.

Reflections on the Patient Education Symposium

About 80 patients and a sizable handful of people in the medical profession were at the patient education symposium last Sunday at the Lorenzen Conference Center at Legacy Emanuel.

The event was kicked off with Robert Phillips as our keynote speaker.  He spoke to the stages of grief that people experience with renal failure and how to maintain a positive attitude by remembering that we are more than our illness.  We are mothers, fathers, brothers, sisters, aunts, uncles, sons, daughters, and grandparents.  A lot of head nodding took place as people related his experience with their own.

 

Dr. Amira Al-Uzri from Doernbecher offered a presentation to the group following Robert which addressed the transition of the pediatric renal patient to the adult patient population.  Her suggestion was to start this transition at 12 years of age.  She brought in some surprising information from the World Health Organization about adolescence ending around age 24... much later than the popular notion that it ends as soon as the child leaves home at 18 years of age.  Adolescence encompasses the time in which the young person is defining who they are.

Before lunch break, awards were given to patients who are not just surviving but thriving on dialysis and to the caregivers who support them on their journey.  As one would only expect, many of the awards went to people who were living and thriving elsewhere that day.  For the recipients who were absent, Troyce shared their accomplishments with the symposium participants.

Following this was an informative section with Lisa Hall and Jaime Head speaking about Vocational Rehabilitation and how disability benefits are affected by social security's program ticket to work.  One of their basic messages was that earning up to $720/mo is allowable indefinitely and over $720 is allowable for a nine month trial period which need not be consecutive.  There are a lot of options for people to try out work when they feel up to it and not get penalized.

The last structured event was the patient panel talking about dialysis modality options which was led by five patients currently undergoing those treatments.

For those who were unable to attend this symposium, there is another planned for the fall.  The speakers, volunteers and themes come directly from the members of the kidney community here in the Portland area.  If you would like to see or hear something in particular, please feel free to join us in the planning of the next event.  We welcome your energy and your input.